An unprecedented advance in care for ALS patients
The Hospital Enfermera Isabel Zendal, recognised for its crucial role during the pandemic, has taken a significant step in the care of patients diagnosed with Amyotrophic Lateral Sclerosis (ALS). This centre has inaugurated the first voice bank in Spain and Europe, a pioneering initiative aimed at preserving the vocal identity of those facing this devastating disease.
With over 70 recordings already made, this project allows patients to retain their original tone and nuances before ALS prevents them from speaking. The technical director of the Day Care Centre for ALS patients (CEADELA), Mayka Marcos, emphasises that this resource is not only a therapeutic tool but also a means to maintain emotional connections with their loved ones.
As the hospital transforms into a specialised centre for rehabilitation and care, its focus is centred on three fundamental pillars: functional rehabilitation, care for ALS patients, and vaccination programmes. The voice bank is integrated within the field of speech therapy, where trained professionals guide patients through a quick and effective process that lasts just 20 minutes.
Through the use of adapted electronic devices, patients will be able to communicate using their own recorded voice. This system is designed to ensure safety and confidentiality within the patient's medical history. So far, 122 people have been assessed to participate in this programme; however, not all have been able to complete the process due to the progression of vocal deterioration.
Aníbal Martín, a patient diagnosed four years ago, shares his experience of how this initiative has positively impacted his life. "The voice is something very personal; although I have lost my ability to speak, I can still hear it," Aníbal comments. For him, having a digitalised voice represents a valuable way to maintain his identity in the face of a disease that takes so much away.
Aníbal emphasises that being able to communicate quickly is essential to avoid frustrations both personally and for those who care for him. "Saying 'I want a glass of water' can become a challenge if you rely solely on a tablet," he explains. The ability to use his own voice provides him not only comfort but also personal recognition among his loved ones.
Despite the initial fear that some newly diagnosed patients feel towards such initiatives, Aníbal encourages other patients to consider the advantages of the voice bank as an active and positive way to face their situation. "The only effective way against this disease is to rehearse every aspect; we must make decisions about our future," he concludes.
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